About the foundation

The goal of the XLID98 Foundation is to support families of individuals affected by XLID98 (also known as KIAA2022/NEXMIF/MRX98) worldwide.
Our hope is to establish a supportive community, educate families, foster collaborations with physicians, scientists and other patient advocacy organizations.  We will also be raising awareness and supporting medical research, helping children diagnosed with this rare condition get the treatment they need to improve their quality of life.

Financial Transparency Statement