Family Resources

The XLID98 community is global but intimate community. The foundation hosts a Facebook group for the community, open to those affected by the condition and their family members. Click the Facebook logo below to visit our Facebook group.

Through the Facebook group, the foundation organizes parent support groups, and an open forum for questions and sharing information. A link to the facebook group is below, as are links to some other resources.

Document: A parent's written summary of their child - for all of those working with him.