Foundation Updates

XLID98 Foundation 2nd Annual Virtual One-Day Conference: May 16, 2026

April 3, 2026

The XLID98 Foundation is thrilled to announce our second annual conference for the XLID98 community. We invite parents, caregivers, friends, family, clinicians, scientists and allied professionals and any other interested parties to attend for a day of knowledge sharing and mutual support.

Speakers present on highly relevant topics including:

  • Gene research
  • Epilepsy
  • Gastro-intestinal issues
  • Behavioural challenges

Bring your questions and participate in discussion.

Registration is free. Donations to support The XLID98 Foundation are welcomed.

Registration information coming soon

NEWS  HOME