XLID98 Awareness Day: May 17, 2026

May 17 marks XL98 Awareness Day, a time dedicated to raising awareness about XLID98—also known as NEXMIF, KIAA2022, or MRX98—a rare neurodevelopmental disorder affecting individuals worldwide.  On XLID98 Awareness Day, we unite to honour the resilience of individuals living with XLID98 and their families. Through increased awareness and support, we move closer to breakthroughs in treatment and care. Buy a t-shirt to mark the occasion! https://www.bonfire.com/store/xlid98-foundation/

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